January 5, 2009

The tube is out. I repeat: The tube is OUT.

And we are leaving it out.
This weekend, I sent Stella’s pediatrician and occupational therapist an email outlining my concerns about the tube and research to back up those concerns. Today, they agreed to a tube-free “trial.” Her doctor said two to three weeks without the tube would be “low risk” given how healthy she is.
We [...]

January 5, 2009

The stubborn determination of hope

Good news. Stella is back to taking in about half of her daily calories from the bottle, just as she did before the recent regression.
However.
My feeling is that the tube is preventing her from recovering completely. I believe that it exacerbates her reflux and makes swallowing more difficult. I found and paid for two medical research papers [...]